Like pills in the cabinet, it all comes down to labels..


IMG_1817Supplements, Supplements and more supplements….

In the quest to not start medicating, I have added new supplements to the mix to help with the, well; everything.  Iron, B12, D and C welcome to our home!  May you have a pleasant stay here and help me get strong again.  May you promote some immunity, RBC growth, energize and sleeps.

Part of being a Lily, means that when I go to the doctor and he recommends something that I don’t want to try, again.  I stand up for myself.  I fight for my life.  Why go through another round of treatments if they leave me painful, bruised, lethargic and wastlanded.

Drugs have always made me nervous.

It all comes down to labels, I’ve got that special set up in my body that just loves to allow the worst of the worst side effects through.  Ohhhhh – you look unpleasant… JOIN THIS PARTY!  I don’t think there is a drug on the market that I don’t have a certain side effect too – on the plus side it’s usually the only 2% experience this.

My body is a wonderland. – if only it was in the way John Mayer coined it.  But no, my body is a “wonder”land; giving doctors the task of experimenting.  Just what will we try next?!  Every time I go in for an appointment, there is a part of me that screams lab rat.

Unfortunately, there isn’t that much known about Lupus, no 2 cases are the same – and everyone’s attacks something different.  So…. You are left suspended, hoping that something will work.  You learn your body, the triggers; so if you switch up treatments you know when enough is enough and you are failing.

That is my day today.

I am scared of being medicated, especially caving to pain pills – where my life becomes a zombie like void and I lose all sense of self.  With this in mind – know – that I only medicate during flares, and it’s only to help the issue that is being inflamed.  I am not on treatments or pain pills.

My threshold for pain is very high, so what feels normal to me in painland – could be brutal for you.  I also treat my body the way it should be treated.  I exercise, duh!  I eat healthy, with the occasional treat because, duh!

I try to be better.

I educate myself on my diagnosis and symptoms, what could happen and what is happening.  I try to always focus on the positive angles.

We create our own happiness.

I am always in control of my outlook, reactions and attitude.

That’s where Lifting with Lupus sprung from, the outlook of knowing that we all struggle – everyday – but it doesn’t need to be a stressor.  Make your happy.  Anyone can be a SPOONIE, anyone can ruin their day before it starts; but why?

Why allow yourself to be cradled by limits, when you can have opportunities?  Why not make the daily struggle be about something, like fighting; than counting out spoons of what you can do?  Why not create a life worth living, than using the sad as a crutch?  Why not help each other?

Like pills in the cabinet, it all comes down to labels.

Is your only identifier Lupus, or chronic whatever, or depression, or anger, or negative.  That creates a horrible side effect.  Get out of the drawer and into the sun, doesn’t it feel better to grow?

Leave a comment

Your email address will not be published. Required fields are marked *